Emmy Love does not have Cystic Fibrosis. Praise God! And her metabolic tests have come back normal as well. All super, absolutely fantasic news! I can breathe again. I didn't for several days after we heard the words Cystic Fibrosis. I have never in my life heard two scarier words.
So, what is going on with my baby girl? I wish I knew! For now, we are going to try yet another medication (making the total 4!) and hope the new combo settles her tummy enough for her to gain weight steadily. We are going to closely monitor her weight from now on as well. If she is still having problems, we will do some more testing in a few months.
Breathe.
2 comments:
Oh! Good news!
You know, my girlfriend had a daughter that never really gained weight. She was off the bottom of the growth chart until after she was about 2. She is still really skinny but nothing was ever wrong with her.
I am glad sweet Emmy is doing great, and I hope she is just like that little girl, healthy and happy, but just a little on the small side.ail.com
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